One yr in the past, the U.S. Division of Well being and Human Providers (HHS) and the Steven & Alexandra Cohen Basis launched the $25-million-dollar LymeX Innovation Accelerator (LymeX) partnership. As this historic partnership celebrates accomplishments with a LymeX First Anniversary video, let’s see how LymeX is carrying momentum ahead.
Lyme illness is complicated, with roughly 476,000 U.S. instances annually. It’s time to study from the thousands and thousands with lived expertise and convey patient-driven innovation and analysis to the forefront of Lyme illness.
Within the phrases of Admiral Rachel L. Levine, MD from the June 2021 Congressional Digital Lyme Collection, “My workplace is embracing transformative innovation, going huge with your complete Biden administration to speed up scientific breakthroughs in innovation with cross-cutting collaboration and partnerships.” The LymeX public-private partnership contains Lyme sufferers at each step.
2021 LymeX Priorities
Our method ahead entails a human-centered strategy to have interaction various voices throughout all sectors and disciplines. From this basis of human-centered and patient-centered methodologies, three precedence themes emerged: (1) Affected person-Centered Improvements; (2) Schooling and Consciousness; and (3) Subsequent-Technology Diagnostics.
Belief is paramount for making progress. LymeX contains persistently “exhibiting up” to pay attention, study, and create a protected house to give attention to the subsequent technology of options.
LymeX additionally makes use of “open innovation” for two-way communication within the open, just like the LymeX.crowdicity.com crowdsourcing platform, to study from the general public in a clear, community-driven method.
2021 LymeX Highlights
Grounded in human-centered innovation, LymeX 2021 achievements embrace:
LymeX Human-Centered Design Workshops, Interviews, and Listening Periods (January 2021 to current): Ranging from the point of view of patient-centered innovation, the LymeX Well being+ (“well being plus”) crew accomplished virtually 700 hours of interviews, listening classes, and workshops.
LymeX Request for Data (RFI) Accelerating Innovation in Diagnostic Testing for Lyme Illness (February 2021): We launched an RFI to grasp the present panorama and rising applied sciences to enhance Lyme illness diagnostics, receiving 32 responses from the general public on how analysis and investments in quickly developed COVID-19 diagnostics could be tailored or repurposed for Lyme and tick-borne ailments.
LymeX Roundtable: Bridging the Belief Hole (April 2021): Greater than 1,500 viewers watched the LymeX Roundtable Webinar that includes inclusive methods and rising applied sciences for tick-borne ailments. Afterward, roughly 70 individuals — together with sufferers, docs, researchers, and policymakers — explored methods to enhance cooperation and communication round Lyme illness.
Well being+ Lyme Illness: Human-Centered Design Report (Could 2021): This LymeX Well being+ report amalgamates particular person anecdotes and views from Lyme sufferers, transforms them by way of qualitative and quantitative analysis into affected person “archetypes” and collective “journeys” for Lyme analysis, therapy, persistent signs, and incapacity, and identifies alternative areas with actionable suggestions for the long run.
LymeX Roundtable: Bridging the Belief Hole Abstract Report (June 2021): A impartial third-party group summarized highlights from the April 2021 LymeX Roundtable and outlined 14 alternatives for a path ahead utilizing patient-driven innovation and patient-driven analysis.
LymeX Schooling and Consciousness Healthathon (June to August 2021): This LymeX Healthathon (just like a hackathon, however as a health-focused dash) known as on the general public to create instructional supplies to boost consciousness about tick-borne illness prevention and assist others profit from the most recent scientific findings. Contributors from all walks of life, together with two profitable Ok-12 innovators, helped lead by instance with Lyme Innovation progress.
LymeX Analysis Workshop: Advancing Analysis for Lyme and Tickborne Ailments (October 2021): Constructing upon the LymeX Roundtable, this workshop invited 50 individuals, together with 17 Lyme sufferers and advocates, to share enter on patient-driven analysis. A impartial third-party group will synthesize discussions and publish on-line in late 2021.
LymeX Diagnostics “Moonshot” Prize Competitors (in growth, extra to be introduced late 2021): By way of an interagency settlement with the NASA Heart of Excellence for Collaborative Innovation, we’re designing the primary part of a prize competitors known as the LymeX Diagnostics “Moonshot”. Following the KidneyX mannequin, the Moonshot can be a multi-phased, multi-year, multi-million-dollar competitors to develop diagnostics cleared by the Meals and Drug Administration (FDA) for measuring energetic an infection of Lyme-causing micro organism within the human physique.
To remain knowledgeable and take part in upcoming LymeX occasions, please go to LymeX.org, observe @Lyme_X on Twitter, be part of LymeX.crowdicity.com, or e-mail [email protected]. We’re trying ahead to the subsequent yr!